{"id":13173,"date":"2016-09-20T14:03:29","date_gmt":"2016-09-20T12:03:29","guid":{"rendered":"http:\/\/sdk.mk\/\/?p=13173"},"modified":"2016-09-20T14:03:29","modified_gmt":"2016-09-20T12:03:29","slug":"te-semuret-nga-fibroza-cistike-perseri-do-te-marrin-ndihme-financiare-per-sherim-pas-reagimit-te-ombudsmanit","status":"publish","type":"post","link":"https:\/\/sdk.mk\/index.php\/ngrije-zerin-per-avokatin-e-popullit\/te-semuret-nga-fibroza-cistike-perseri-do-te-marrin-ndihme-financiare-per-sherim-pas-reagimit-te-ombudsmanit\/","title":{"rendered":"T\u00cb S\u00cbMUR\u00cbT NGA FIBROZA CISTIKE P\u00cbRS\u00cbRI DO T\u00cb MARRIN NDIHM\u00cb FINANCIAR\u00cb P\u00cbR SH\u00cbRIM, PAS REAGIMIT T\u00cb OMBUDSMANIT"},"content":{"rendered":"<div class=\"f52428582a4b906b2d2e2a7d733c7d27\" data-index=\"7\" style=\"float: none; margin:10px 0 10px 0; text-align:center;\">\n<!-- MSP Ads Asynchronous JS Tag - Generated with Revive Adserver v5.4.1 -->\r\n<ins data-revive-zoneid=\"167\" data-revive-id=\"060fdb01f6430ec164d3519234aa4967\"><\/ins>\r\n<script async src=\"\/\/panel.ads.com.mk\/www\/delivery\/asyncjs.php\"><\/script>\n<\/div>\n<p>Personat me fibroz\u00eb cistike prej dje, jan\u00eb kthyer n\u00eb Rregulloren p\u00ebr vler\u00ebsim t\u00eb nivelit t\u00eb kufizimit t\u00eb personave n\u00eb zhvillimin mental dhe fizik dhe ata p\u00ebrs\u00ebri do t\u00eb ken\u00eb ndihm\u00ebn financiare p\u00ebr trajtimin e k\u00ebsaj s\u00ebmundjeje t\u00eb pash\u00ebrueshme. Kjo ndihm\u00eb, si\u00e7 lajm\u00ebroi <a href=\"http:\/\/SAKAMDAKAZAM.MK\" data-saferedirecturl=\"https:\/\/www.google.com\/url?hl=en&amp;q=http:\/\/SAKAMDAKAZAM.MK&amp;source=gmail&amp;ust=1474459053938000&amp;usg=AFQjCNHrRRdpOH8HMWpJXrEvssKIvbeHlw\">SAKAMDAKAZAM.MK<\/a>, k\u00ebtyre personave u ishte nd\u00ebrprer\u00eb n\u00eb fillim t\u00eb k\u00ebtij viti dhe si pasoj\u00eb, Avokati i Popullit ngriti iniciativ\u00eb n\u00eb Ministrin\u00eb e pun\u00ebs sociale, Ministrin\u00eb e sh\u00ebndetit dhe Ministrin\u00eb e arsimit. Inciativa k\u00ebrkonte ndryshimin e Rregullores, n\u00eb m\u00ebnyr\u00eb q\u00eb t\u00eb kthehej ndihma q\u00eb merrnin familjet e k\u00ebtyre f\u00ebmij\u00ebve t\u00eb s\u00ebmur\u00eb r\u00ebnd\u00eb dhe s\u00eb paku pjes\u00ebrisht t\u00eb mund t\u00eb mbulohen shpenzimet tejet t\u00eb larta p\u00ebr mjekim dhe vazhdim t\u00eb jet\u00ebs s\u00eb tyre.<\/p>\n<p>Ndryshimin e Rregullores e kreu Ministria kompetente p\u00ebr pun\u00eb dhe politik\u00eb sociale dhe ajo\u00a0 u shpall n\u00eb gazet\u00ebn zyrtare, n\u00eb numrin e djesh\u00ebm. Ndryshimi \u00ebsht\u00eb b\u00ebr\u00eb n\u00eb nenin 11 t\u00eb Rregullores, ku thuhet q\u00eb, krah personave me s\u00ebmundje t\u00eb zemr\u00ebs, hemofili, diabet, leukemi dhe t\u00eb tjera, persona me forma t\u00eb r\u00ebnda t\u00eb s\u00ebmundjes kronike dhe me gjendje sh\u00ebndet\u00ebsore t\u00eb d\u00ebmtuar r\u00ebnd\u00eb, konsiderohen dhe personat me fibroz\u00eb cistike. \u00cbsht\u00eb shum\u00eb e r\u00ebnd\u00ebsishme q\u00eb personat me fibroz\u00eb cistike t\u00eb jen\u00eb n\u00eb k\u00ebt\u00eb nen t\u00eb Rregullores, sepse p\u00ebrndryshe, nuk do t\u00eb mund t\u00eb marrin ndihm\u00ebn financiare p\u00ebr trajtimin e shtrenjt\u00eb, i cili p\u00ebrve\u00e7 ila\u00e7eve specifike dhe inhalacioneve, n\u00ebnkupton edhe ushqimin specifik, t\u00eb cilin duhet ta konsumojn\u00eb \u00e7do dit\u00eb, q\u00eb t\u00eb mund t\u00eb vazhdojn\u00eb tjetojn\u00eb.<\/p>\n<p>Jet\u00ebgjat\u00ebsia mesatare e personave me fibroz\u00eb cistike n\u00eb Maqedoni \u00ebsht\u00eb vet\u00ebm 12 vjet, nd\u00ebrsa n\u00eb bot\u00eb,\u00a0 30 vjet. Tani, me metodat m\u00eb t\u00eb reja t\u00eb mjekimit n\u00ebp\u00ebrmjet t\u00eb qelizave, i cili filloi t\u00eb praktikohet n\u00eb Franc\u00eb, po b\u00ebhen hapa drejt vazhdimit t\u00eb jet\u00ebs s\u00eb k\u00ebtyre personave edhe deri n\u00eb 50 vjet.<\/p>\n<p>N\u00eb Maqedoni, n\u00eb koh\u00eb prej nj\u00eb viti jan\u00eb regjistruar gjithsej rreth 120 t\u00eb s\u00ebmur\u00eb nga fibroza cistike.<\/p>\n\n<div style=\"font-size: 0px; height: 0px; line-height: 0px; margin: 0; padding: 0; clear: both;\"><\/div>","protected":false},"excerpt":{"rendered":"<p>Personat me fibroz\u00eb cistike prej dje, jan\u00eb kthyer n\u00eb Rregulloren p\u00ebr vler\u00ebsim t\u00eb nivelit t\u00eb kufizimit t\u00eb personave n\u00eb zhvillimin [&hellip;]<\/p>\n","protected":false},"author":9,"featured_media":9478,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_mo_disable_npp":"","inline_featured_image":false},"categories":[3087,3083],"tags":[],"imageURL":"https:\/\/sdk.mk\/wp-content\/uploads\/2016\/07\/retki-bolesti-odluka-650x545.jpg","thumbURL":"https:\/\/sdk.mk\/wp-content\/uploads\/2016\/07\/retki-bolesti-odluka-250x209.jpg","categoryNames":["Maqedonia","Ngrije z\u00ebrin p\u00ebr Avokatin e Popullit"],"feature_caption":"","subtitle":"a:1:{s:9:\"td_source\";s:45:\"\u0421\u043a\u043e\u043f\u0458\u0435,(\u0421\u0410\u041a\u0410\u041c\u0414\u0410\u041a\u0410\u0416\u0410\u041c.\u041c\u041a)","views":"5263","source":"","yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v15.0 - 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