{"id":13718,"date":"2016-09-29T15:10:35","date_gmt":"2016-09-29T13:10:35","guid":{"rendered":"http:\/\/sdk.mk\/\/?p=13718"},"modified":"2016-09-29T15:10:35","modified_gmt":"2016-09-29T13:10:35","slug":"qeveria-e-ktheu-ndihmen-per-te-semuret-nga-fibroza-cistike-pas-reagimit-te-avokatit-te-popullit","status":"publish","type":"post","link":"https:\/\/sdk.mk\/index.php\/ngrije-zerin-per-avokatin-e-popullit\/qeveria-e-ktheu-ndihmen-per-te-semuret-nga-fibroza-cistike-pas-reagimit-te-avokatit-te-popullit\/","title":{"rendered":"QEVERIA E KTHEU NDIHM\u00cbN P\u00cbR T\u00cb S\u00cbMUR\u00cbT NGA FIBROZA CISTIKE PAS REAGIMIT T\u00cb AVOKATIT T\u00cb POPULLIT"},"content":{"rendered":"<div class=\"f52428582a4b906b2d2e2a7d733c7d27\" data-index=\"7\" style=\"float: none; margin:10px 0 10px 0; text-align:center;\">\n<!-- MSP Ads Asynchronous JS Tag - Generated with Revive Adserver v5.4.1 -->\r\n<ins data-revive-zoneid=\"167\" data-revive-id=\"060fdb01f6430ec164d3519234aa4967\"><\/ins>\r\n<script async src=\"\/\/panel.ads.com.mk\/www\/delivery\/asyncjs.php\"><\/script>\n<\/div>\n<p>T\u00eb s\u00ebmurit nga fibroza cistike p\u00ebrs\u00ebri do t\u00eb marrin ndihm\u00ebn financiare nga Ministria e pun\u00ebs dhe politik\u00ebs sociale. N\u00eb janar t\u00eb k\u00ebtij viti, me vendimin e Qeveris\u00eb ata u hoq\u00ebn nga lista e pacient\u00ebve me s\u00ebmundje t\u00eb rralla dhe si pasoj\u00eb, e humb\u00ebn ndihm\u00ebn prej 4.300 denar\u00ebve. P\u00ebr ndihm\u00ebn financiare, sasia e s\u00eb cil\u00ebs do t\u00eb varet nga gjendja sociale e familjes me t\u00eb s\u00ebmur\u00eb nga fibroza cistike, do t\u00eb mund t\u00eb aplikojn\u00eb n\u00eb qendrat p\u00ebr pun\u00eb sociale.<\/p>\n<p>Qeveria i inkuadroi k\u00ebto paqeta p\u00ebr ndihm\u00eb financiare p\u00ebr t\u00eb s\u00ebmur\u00ebt nga fibroza cistike pas reagimeve t\u00eb zyr\u00ebs s\u00eb Avokatit t\u00eb Popullit, p\u00ebr t\u00eb cil\u00ebn redaksia e SAKAMDAKAZAM ka publikuar nj\u00eb varg tekstesh.<\/p>\n<p>\u201cFibroza cistike \u00ebsht\u00eb s\u00ebmundje multisistemike p\u00ebr t\u00eb cil\u00ebn, p\u00ebrve\u00e7 ila\u00e7eve, nevojitet edhe konsumim shum\u00eb m\u00eb i madh i n\u00eb krahasim me njer\u00ebzit e sh\u00ebndosh\u00eb, n\u00eb m\u00ebnyr\u00eb q\u00eb t\u00eb mund t\u00eb funksionojn\u00eb normalisht. Kjo do t\u00eb thot\u00eb rritje e harxhimeve p\u00ebr ushqim, p\u00ebr kontroll t\u00eb s\u00ebmundjes dhe p\u00ebr transport&#8230;Kjo ndihm\u00eb do t\u00eb thot\u00eb shum\u00eb p\u00ebr t\u00eb gjitha familjet me fibroz\u00eb cistike, sidomos p\u00ebr familjet q\u00eb jan\u00eb raste sociale. Kemi n\u00ebn\u00eb t\u00eb vetme t\u00eb papun\u00eb, e cila ka dy f\u00ebmij\u00eb me fibroz\u00eb cistike. Shum\u00eb u g\u00ebzova kur d\u00ebgjova se p\u00ebr familjet a atilla do t\u00eb ket\u00eb ndihm\u00eb m\u00eb t\u00eb madhe\u201d, tha Snezhana Boj\u00e7in, kryetare e Shoqat\u00ebs p\u00ebr fibroz\u00eb cistike.<\/p>\n<p>N\u00eb tryez\u00ebn e rrumbullak\u00ebt t\u00eb dedikuar k\u00ebsaj s\u00ebmundjeje t\u00eb rrall\u00eb, ajo tha q\u00eb do t\u00eb ngren\u00eb iniciativ\u00eb q\u00eb t\u00eb sigurojn\u00eb kushte t\u00eb barabarta p\u00ebr mjekim t\u00eb t\u00eb gjith\u00eb t\u00eb s\u00ebmur\u00ebve nga s\u00ebmundje t\u00eb rralla. Sipas asaj, kushti baz\u00eb q\u00eb t\u00eb arrihet nj\u00eb trajtim i barabart\u00eb \u00ebsht\u00eb t\u00eb p\u00ebrgatitet dhe t\u00eb shpallet publikisht regjistri nacional i pacient\u00ebve me s\u00ebmundje t\u00eb rralla.<\/p>\n<p>\u201cKonsiderojm\u00eb q\u00eb regjistri duhet t\u00eb jet\u00eb i hapur p\u00ebr publikun, si\u00e7 \u00ebsht\u00eb n\u00eb shtetet evropiane dhe t\u00eb ket\u00eb qasje edhe p\u00ebr popullat\u00ebn m\u00eb t\u00eb gjer\u00eb\u201d, thot\u00eb Boja\u00e7ini.<\/p>\n<p>N\u00eb Maqedoni nuk ka t\u00eb dh\u00ebna zyrtare rreth numrit t\u00eb s\u00ebmur\u00ebve nga fibroza cistike, e as rreth jet\u00ebgjat\u00ebsis\u00eb s\u00eb tyre. Sipas disa t\u00eb dh\u00ebnave t\u00eb shoqat\u00ebs, ka rreth nj\u00ebqind t\u00eb s\u00ebmur\u00eb dhe jet\u00ebgjat\u00ebsia e tyre tani \u00ebsht\u00eb deri 12 vjet.<\/p>\n<p>N\u00eb shtetet e Evrop\u00ebs me terapi t\u00eb mir\u00eb dhe trajtim t\u00eb duhur t\u00eb s\u00ebmundjes, jet\u00ebgjat\u00ebsia e t\u00eb s\u00ebmur\u00ebve nga fibroza cistike \u00ebsht\u00eb zgjatur nga 30 deri n\u00eb 40 vjet.<\/p>\n<p>N\u00eb qendr\u00ebn e re p\u00ebr fibroz\u00eb cistike n\u00eb Institutin p\u00ebr s\u00ebmundje t\u00eb mushk\u00ebrive t\u00eb bardha t\u00eb f\u00ebmij\u00ebve n\u00eb Kozle, p\u00ebr momentin mjekohen kat\u00ebr pacient\u00eb me fibroz\u00eb cistike, gjendja e t\u00eb cil\u00ebve \u00ebsht\u00eb shum\u00eb e r\u00ebnd\u00eb. Dr. Oliver Zafirovski, drejtor i Institutit n\u00eb Kozle, tha q\u00eb ka 73 pacient\u00eb me fibroz\u00eb cistike, q\u00eb mjekohen n\u00eb qendr\u00ebn marrin terapi.<\/p>\n\n<div style=\"font-size: 0px; height: 0px; line-height: 0px; margin: 0; padding: 0; clear: both;\"><\/div>","protected":false},"excerpt":{"rendered":"<p>T\u00eb s\u00ebmurit nga fibroza cistike p\u00ebrs\u00ebri do t\u00eb marrin ndihm\u00ebn financiare nga Ministria e pun\u00ebs dhe politik\u00ebs sociale. N\u00eb janar [&hellip;]<\/p>\n","protected":false},"author":9,"featured_media":9466,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_mo_disable_npp":"","inline_featured_image":false},"categories":[3087,3083],"tags":[],"imageURL":"https:\/\/sdk.mk\/wp-content\/uploads\/2016\/07\/snezana-bojcin-01-1-650x379.jpg","thumbURL":"https:\/\/sdk.mk\/wp-content\/uploads\/2016\/07\/snezana-bojcin-01-1-250x146.jpg","categoryNames":["Maqedonia","Ngrije z\u00ebrin p\u00ebr Avokatin e Popullit"],"feature_caption":"","subtitle":"a:3:{s:16:\"td_post_template\";s:23:\"single_template_british\";s:11:\"td_subtitle\";s:198:\"Qeveriaektheundihm\u00ebsfinanciarep\u00ebrt\u00ebs\u00ebmuritngafibrozacistike,pasreagimitt\u00ebzyr\u00ebss\u00ebAvokatitt\u00ebPopullit,p\u00ebrt\u00ebcil\u00ebnredaksiaeSAKAMDAKAZAMkapublikuarnj\u00ebvargtekstesh.\";s:9:\"td_source\";s:45:\"\u0421\u043a\u043e\u043f\u0458\u0435,(\u0421\u0410\u041a\u0410\u041c\u0414\u0410\u041a\u0410\u0416\u0410\u041c.\u041c\u041a)","views":"3577","source":"","yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v15.0 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>QEVERIA E KTHEU NDIHM\u00cbN P\u00cbR T\u00cb S\u00cbMUR\u00cbT NGA FIBROZA CISTIKE PAS REAGIMIT T\u00cb AVOKATIT T\u00cb POPULLIT - \u0421\u0430\u043a\u0430\u043c \u0414\u0430 \u041a\u0430\u0436\u0430\u043c<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sdk.mk\/index.php\/ngrije-zerin-per-avokatin-e-popullit\/qeveria-e-ktheu-ndihmen-per-te-semuret-nga-fibroza-cistike-pas-reagimit-te-avokatit-te-popullit\/\" \/>\n<meta property=\"og:locale\" content=\"mk_MK\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"QEVERIA E KTHEU NDIHM\u00cbN P\u00cbR T\u00cb S\u00cbMUR\u00cbT NGA FIBROZA CISTIKE PAS REAGIMIT T\u00cb AVOKATIT T\u00cb POPULLIT - \u0421\u0430\u043a\u0430\u043c \u0414\u0430 \u041a\u0430\u0436\u0430\u043c\" \/>\n<meta property=\"og:description\" content=\"T\u00eb s\u00ebmurit nga fibroza cistike p\u00ebrs\u00ebri do t\u00eb marrin ndihm\u00ebn financiare nga Ministria e pun\u00ebs dhe politik\u00ebs sociale. 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